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Your Care Journey

Being born with a cleft lip and/or palate is something that can be treated, supported, and lived with confidently — and we’re here to guide you every step of the way.

This page outlines what to expect on your cleft care journey — from early diagnosis through to adulthood. Everyone’s experience is different, but this gives you a clear idea of how we care for you or your child at each stage.

Cleft Care Journey Widget

Before Birth – Antenatal Diagnosis

Sometimes a cleft lip (and less commonly a cleft palate) can be picked up during a routine 20-week pregnancy scan. If this happens, you’ll be referred to a specialist cleft nurse.

We’ll help by:
  • Explaining the condition clearly
  • Providing emotional support & advice
  • Helping prepare for feeding
  • Connecting you with other families

Feeding Your Baby

Feeding a baby with a cleft can be a little different — but with the right techniques and support, most babies feed well and thrive.

  • Help finding the best feeding method (bottle, breast, or combination)
  • Provision of specialist bottles if needed
  • One-to-one support at home or in hospital

Visit our Feeding Your Baby page for practical videos and advice.

Early Years – Surgery & Support

Most babies will have surgery within the first 3–12 months of life.

  • Cleft lip repair: 3–6 months
  • Cleft palate repair: 9–13 months

After surgery, our team continues to monitor speech, hearing, feeding, dental growth, and psychological wellbeing.

Ongoing Support – Childhood to Teens

Children often benefit from care at different ages as they grow. This includes speech therapy, hearing checks, orthodontic support, and emotional support.

Key Review Points: Age 3, Age 5, Age 10, Age 15.

Transition to Adult Services

As young people get older, we support them to take more ownership of their care.

  • Understand treatment options in later teen years
  • Explore surgical refinements (if needed)
  • Prepare for adult clinics
  • Meet adult team members in advance

We’re here to support you throughout — into adulthood too.